Try: What they do provide care for a person who is near the end of life keep the person who is dying as comfortable and pain-free as possible provide care in the home or in a hospice facility support the family in providing in-home or end-of-life care what to know about costs hospice services charge by the number of days or weeks that services are provided medicare or medicaid may cover hospice costs most insurance plans do not cover these costs you must pay all costs not covered by medicare medicaid or insurance how to find them contact the american hospice foundation at 202-223-0204 or www americanhospice org contact the national association for home care and hospice at 202-547-7424 or www nahc org contact the hospice foundation of america at 1-800-854-3402 or www hospicefoundation org contact the national hospice and palliative care organization at 1-800-658-8898 or www caringinfo org information references "caring for a person with alzheimer’s disease your easy-to-use guide from the national institute on aging" by national institute on aging 2011 available at www nia nih gov

Materials: n/a

Categories: Sage, Topic, Caregiver Needs&Support, Emotional Psychological, Medical Physical

Information: n/a

References: n/a

Keywords: Hospice end of life dying at home grief counseling family support dealing with death

*This information is listed as a Fact Sheet and is not explicitly medically licensed

Try: What they do make a home visit and suggest needed services help Care recipient (cr) get needed services what to know about costs geriatric care managers charge by the hour most insurance plans don’t cover these costs medicare does not pay for this service cr will probably have to pay for this service how to find them call the national association of professional geriatric care managers at 1-520-881-8008 or visit their website at www caremanager org information references "caring for a person with alzheimer’s disease your easy-to-use guide from the national institute on aging" by national institute on aging 2011 available at www nia nih gov

Materials: n/a

Categories: Sage, Topic, Caregiver Needs&Support, Emotional Psychological, Maintenance, Medical Physical, Personal

Information: n/a

References: n/a

Keywords: Geriatric care managers help at home getting needed services need professional care manager

*This information is listed as a Fact Sheet and is not explicitly medically licensed

Try: What they do provide short stays from a few days to a few weeks in a nursing home or other place for the Care recipient (cr) allow care giver cg to get a break to rest or go on a vacation what to know about costs respite services charge by the number of days or weeks that services are provided medicare or medicaid may cover the cost of up to 5 days in a row of respite care in an inpatient facility most insurance plans do not cover these costs you must pay all costs not covered by medicare medicaid or insurance how to find them visit the national respite locator service at www respitelocator org information references "caring for a person with alzheimer’s disease your easy-to-use guide from the national institute on aging" by national institute on aging 2011 available at www nia nih gov

Materials: n/a

Categories: Sage, Topic, Caregiver Needs&Support, Emotional Psychological, Personal, Social

Information: n/a

References: n/a

Keywords: Respite care giver needs a break adult day care help during the day care giver is going on vacation

*This information is listed as a Fact Sheet and is not explicitly medically licensed

Try: What they do home heath service agencies will send a home health aide to your home to help you care for the Care recipient (cr) these aides provide care and or company for the person they may come for a few hours or stay for 24 hours some home health aides are better trained and supervised than others what to know about costs home health services charge by the hour medicare covers some home health service costs most insurance plans do not cover these costs you must pay all costs not covered by medicare medicaid or insurance how to find them ask your doctor or other health care professional about good home health care services in your area look in your phone book under home health care information references "caring for a person with alzheimer’s disease your easy-to-use guide from the national institute on aging" by national institute on aging 2011 available at www nia nih gov

Materials: n/a

Categories: Sage, Topic, Caregiver Needs&Support, Maintenance, Medical Physical, Personal, Mobility, Needs Some Assistance, Needs Much Assistance, Immobile, Independence, Some Supervision, Maximum Supervision

Information: n/a

References: n/a

Keywords: Home care help at home professional care services home health aide home health care services professional care givers living at home medical care at home help with care respite asking for help

*This information is listed as a Fact Sheet and is not explicitly medically licensed

Try: Is your service licensed and accredited what is the cost of your services what is included and not included in your services how many days a week and hours a day will an aide come to my home how do you check the background and experience of your home health aides how do you train your home health aides can i get special help in an emergency what types of emergency care can you provide who do i contact if there is a problem information references "caring for a person with alzheimer’s disease your easy-to-use guide from the national institute on aging" by national institute on aging 2011 available at www nia nih gov

Materials: n/a

Categories: Sage, Topic, Caregiver Needs&Support, Financial, Legal, Maintenance, Medical Physical, Personal

Information: n/a

References: n/a

Keywords: Home health care agreement home health care contract home care help at home professional care services home health aide home health care services professional care givers living at home medical care at home help with care respite asking for help

*This information is listed as a Fact Sheet and is not explicitly medically licensed

Try: Many care recipients cr prefer to stay at home as they age and need additional care the goal of home care is to help the cr remain at home as long as possible it may be right for the cr if she only needs minor assistance with the daily activities and enjoys a close network of nearby family and friends in many areas the cr has a range of options to help staying in home everyone’s situation is different and several factors will weigh in on the best choice for you here are some of the issues in evaluating your options location and accessibility the location of the cr’s home will be a major factor in determining if in home care is appropriate if the cr lives near potential caregivers and other resources in home care may be more appropriate home accessibility and maintenance a smaller and more manageable home is better for in home care for example if the cr has a small yard it will be easier to manage support available many crs prefer to rely on family to provide help but as needs increase they might not be able to fill in all of the gaps it’s important to consider proximity to community services and activities as well be sure to see if the cr has family and friends nearby medical conditions if the cr has a chronic medical condition that is expected to worsen over time it’s especially important to think about if she be able to handle health and mobility problems if the medical condition is relatively minor home care is probably a good option finances making a budget with anticipated expenses can help the cr determine if in home care is realistic alternate options like assisted living can be expensive but extensive in home help can rapidly become extremely expensive as well information references helpguide org

Materials: n/a

Categories: Caregiver Needs&Support, Financial, Medical Physical

Information: n/a

References: n/a

Keywords: Home in home care care services

*This information is listed as a Fact Sheet and is not explicitly medically licensed

Try: Here are some places that can give you support and advice alzheimer alzheimer’s disease education and referral adear center p o box 8250 silver spring md 20907-8250 phone 1-800-438-4380 www nia nih gov alzheimers the adear center offers information on diagnosis treatment patient care caregiver needs long-term care and research and clinical trials related to ad staff can refer you to local and national resources or you can search for information on the website the center is a service of the national institute on aging part of the federal government government’s national institutes of health alzheimer alzheimer’s association 225 n michigan avenue suite 1700 chicago il 60601 phone 1-800-272-3900 www alz org the alzheimer alzheimer’s association offers information a help line and support services to people with ad and their caregivers local chapters across the country offer support groups including many that help with early-stage ad call or go online to find out where to get help in your area the association also funds ad research alzheimer alzheimer’s foundation of america 322 eighth avenue 7th floor new york ny 10001 phone 1-866-232-8484 www alzfdn org the alzheimer alzheimer’s foundation of america provides information about how to care for people with ad as well as a list of services for people with ad it also offers information for caregivers and their families through member organizations services include a toll-free hotline publications and other educational materials eldercare locator phone 1-800-677-1116 www eldercare gov caregivers often need information about community resources such as home care adult day care and nursing homes contact the eldercare locator to find these resources in your area the eldercare locator is a service of the administration on aging the federal government funds this service national institute on aging information center p o box 8057 gaithersburg md 20898-8057 phone 1-800-222-2225 www nia nih gov the nia information center offers free helpful publications about aging many of these publications are in both english and spanish they can be viewed printed and ordered from the internet the nia along with the national library of medicine also offers a website specially designed for seniors called nihseniorhealth which is available at www nihseniorhealth gov information references "caring for a person with alzheimer’s disease your easy-to-use guide from the national institute on aging" by national institute on aging 2011 available at www nia nih gov

Materials: n/a

Categories: Sage, Topic, Caregiver Needs&Support, Maintenance, Medical Physical, Personal, Cognitive Awareness, Somewhat Aware, Unaware, Long-Term Memory, So-So L T Memory, Poor L T Memory, Short-Term Memory, So-So S T Memory, Poor S T Memory

Information: n/a

References: n/a

Keywords: Care giver resources information services support groups getting help from others finding information need to find information need support

*This information is listed as a Fact Sheet and is not explicitly medically licensed

Try: Resentment often builds up between siblings because one sibling is taking on all responibility of caregiving information here are some reasons why other siblings may not do their share of caregiving the sibling feels that contributing financially is good enough a male sibling may feel that caregiving is only women women’s work the sibling may be grieving the situation and in denial over what is happening with their parent the sibling may be choosing to ignore the situation hoping it will go away and things will go back to the way they were the sibling may have too many of his or her own responsibilities and feels that he or she is incapable of helping the sibling lives far away the parent may only want one sibling to care for them or the sibling may believe this to be true when it is not you the caregiver aren’t asking for help you aren’t willing to share your parent parent’s attention with anyone else getting to the bottom of these issues will help ease stress and frustration in your family references adapted from information found in the book the complete eldercare planner by joy loverde

Materials: n/a

Categories: Caregiver Needs&Support, Cognitive Intellectual, Communication, Emotional Psychological

Information: n/a

References: n/a

Keywords: Frustration resentment stress family

*This information is listed as a Fact Sheet and is not explicitly medically licensed

Try: Family caregivers often feel similar emotions being aware of these feelings can help caregivers get the support they need information anger being angry at the illness destroying your loved one or being angry at other family members who are not helping with the caregiving anxiety being anxious about relationships that are struggling while you are caregiving or being anxious because you know the caregiving is hard on your family fatigue feeling tired of working at a job and caring for your own needs those of your nuclear family and then the Care recipient (cr) too fear fear of the unknown frustration being frustrated that things aren’t working as you had hoped or being frustrated at the people in your life who aren’t understanding to your situation grief grief at losing a loved-one guilt guilt that you aren’t able to care for everyone like you used to or guilt that you know your loved-one isn’t sick on purpose resentment resenting that you are always taking care of someone else while your own needs aren’t being met sadness feeling sad that your loved-one has become someone you don’t know anymore references taken from information found in the book caring for your aging parents by kerris s smith

Materials: n/a

Categories: Caregiver Needs&Support, Cognitive Intellectual, Communication, Emotional Psychological, Medical Physical, Social

Information: n/a

References: n/a

Keywords: Emotions anger guilt grief feelings

*This information is listed as a Fact Sheet and is not explicitly medically licensed

Try: Care recipient’s cr may have nutritional needs that differ from a normal person an appropriate diet can lead to a better quality of life for the cr the following is a list of suggested nutritional guidelines for an elderly cr fruit – focus on whole fruits rather than juices for more fiber and vitamins and aim for around 1.5 to 2 servings each day veggies -choose anti-oxidant rich dark leafy greens such as kale spinach and broccoli as well as oranges and yellows such as carrots squash and yams try for 2 to 2.5 cups of veggies every day calcium – crs often need adequate calcium intake to prevent osteoporosis and bone fractures seniors need 1 200 mg of calcium a day through servings of milk yogurt or cheese grains -choose whole grains over processed white flour for more nutrients and a higher fiber count try for 6-7 ounces of grains each day and one ounce is about 1 slice of bread protein – most individuals need about 5 grams per pound of bodyweight simply divide your bodyweight in half to know how many grams you need vary your sources with more fish beans peas nuts eggs milk cheese and seeds be sure to include these important vitamins and minerals in the cr’s diet water – crs can be prone to dehydration because their bodies can lose some ability to regulate fluid levels and their sense of thirst is dulled vitamin b – after 50 the stomach produces less gastric acid making it difficult to absorb vitamin b-12, needed to help keep blood and nerves vital get the recommended daily intake 2 4 mcg of b12 from fortified foods or a vitamin vitamin d – the cr can get vitamin d through sun exposure and a few foods fatty fish egg yolk and fortified milk with age the cr’s skin is less efficient at synthesizing vitamin d so consult a doctor about supplementing with fortified foods or a multivitamin note if the cr has a specific medical condition consult a physician regarding the cr’s diet information references

Materials: n/a

Categories: Caregiver Needs&Support, Medical Physical, Taste

Information: n/a

References: n/a

Keywords: Diet nutrition food

*This information is listed as a Fact Sheet and is not explicitly medically licensed